Abstract

Fluctuating Adaptation in Caregivers of Schizophrenia Patients: The Process of Caregiver Preparedness in Their Families-A Grounded Theory Study

Author(s): Azadeh Eghbal Manesh*, Mohammad Zoladl and Asghar Dalvandi

Introduction: Schizophrenia is a chronic life-devastating disease with bizarre symptoms managed by family caregivers. As one of the most important components of caring is caregiving preparedness, this study aims to explore this process in families of schizophrenia patients in Iran.

Methods: After explaining our goals and obtaining written consent, we conducted twenty semi-structured interviews with family members and healthcare providers of schizophrenia patients. Then recorded their voices, transcribed them verbatim, analyzed them, and estimated their trustworthiness each session.

Result: This theory is made up of six main themes, including "encountering the crisis of the unknown," "confronting mental health inequalities in society," "role confusion," "facilitating family-centred care," "adaptive endeavor," and "fluctuating adaptation in the care of schizophrenia patients."

Conclusion: The findings of this study highlighted barriers, facilitators, strategies, and consequences of the caregiving preparedness process. These findings can be used in evidence-based care, better-educating caregivers and guiding a better understanding of this issue for health policymakers.

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